Article
Parental Perspectives on Whole-Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility
7 Jul 2017
Abstract excerpt
PURPOSE: To explore how parents of pediatric cancer patients perceived the utility of clinical tumor and germline whole-exome sequencing (WES) results. PATIENTS AND METHODS: We conducted longitudinal interviews with parents of a diverse pediatric cancer population before disclosure of WES results (n=64), then one to eight months (n=33) after disclosure. Interview transcripts were analyzed using a thematic...
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