Article
Helping young children understand inherited cancer predisposition syndromes using bibliotherapy.
Journal of genetic counseling - 1 Aug 2021
Schlub Georgina M, Crook Ashley, Barlow-Stewart Kristine, Fleming Jane, Kirk Judy, Tucker Kathy, Greening Sian
Abstract excerpt
Communication with children about hereditary conditions in the family can be difficult for parents. Yet, good communication strategies are leading determinants of adaptation and resilience. With inherited cancer predisposition syndromes that can affect young children such as Li-Fraumeni syndrome (LFS) and hereditary pheochromocytoma and paraganglioma syndrome (HPPS), genetic testing and subsequent surveillance in...
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