Article
"A change in perspective": Exploring the experiences of adolescents with hereditary tumor predisposition.
Pediatric blood & cancer - 1 Jan 2019
Weber Evan, Shuman Cheryl, Wasserman Jonathan D, Barrera Maru, Patenaude Andrea F, Fung Karen, Chitayat David, Malkin David, Druker Harriet
Abstract excerpt
BACKGROUND: Hereditary tumor predisposition syndromes (HTPSs) are being recognized more frequently in the etiology of pediatric cancer. Previous research indicates that disclosure of tumor susceptibility is a significant event in adolescents' lives. Insight into adolescents' adjustment to knowledge of their syndromes can guide healthcare delivery, particularly genetic counseling. This study explored the...
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