Article
Li-Fraumeni Exploration Consortium Data Coordinating Center: Building an Interactive Web-Based Resource for Collaborative International Cancer Epidemiology Research for a Rare Condition.
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology - 1 May 2020
Mai Phuong L, Sand Sharon R, Saha Neiladri, Oberti Mauricio, Dolafi Tom, DiGianni Lisa, Root Elizabeth J, Kong Xianhua, Bremer Renee C, Santiago Karina M, Bojadzieva Jasmina, Barley Derek, Novokmet Ana, Ketchum Karen A, Nguyen Ngoc, Jacob Shine, Nichols Kim E, Kratz Christian P, Schiffman Joshua D, Evans D Gareth, Achatz Maria Isabel, Strong Louise C, Garber Judy E, Ladwa Sweta A, Malkin David, Weitzel Jeffrey N
Abstract excerpt
BACKGROUND: The success of multisite collaborative research relies on effective data collection, harmonization, and aggregation strategies. Data Coordination Centers (DCC) serve to facilitate the implementation of these strategies. The utility of a DCC can be particularly relevant for research on rare diseases where collaboration from multiple sites to amass large aggregate datasets is essential. However,...
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