Article
'We don't know for sure': discussion of uncertainty concerning multigene panel testing during initial cancer genetic consultations.
Familial cancer - 1 Jan 2020
Medendorp Niki M, Hillen Marij A, van Maarschalkerweerd Pomme E A, Aalfs Cora M, Ausems Margreet G E M, Verhoef Senno, van der Kolk Lizet E, Berger Lieke P V, Wevers Marijke R, Wagner Anja, Caanen Barbara A H, Stiggelbout Anne M, Smets Ellen M A
Abstract excerpt
Pre-test counseling about multigene panel testing involves many uncertainties. Ideally, counselees are informed about uncertainties in a way that enables them to make an informed decision about panel testing. It is presently unknown whether and how uncertainty is discussed during initial cancer genetic counseling. We therefore investigated whether and how counselors discuss and address uncertainty, and the extent...
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