Article
Assessment of the Timing of Milestone Clinical Events in Patients With Epidermolysis Bullosa From North America.
JAMA dermatology - 1 Feb 2019
Feinstein James A, Jambal Purevsuren, Peoples Kathleen, Lucky Anne W, Khuu Phuong, Tang Jean Y, Lara-Corrales Irene, Pope Elena, Wiss Karen, Hook Kristen P, Levin Laura E, Morel Kimberly D, Paller Amy S, McCuaig Catherine C, Powell Julie, Eichenfield Lawrence F, Price Harper, Levy Moise L, Schachner Lawrence A, Browning John C, Bayliss Susan, Jahnke Marla, Shwayder Tor, Glick Sharon A, Bruckner Anna L
Abstract excerpt
Importance: Children with epidermolysis bullosa (EB) comprise a rare population with high morbidity and mortality. An improved understanding of the clinical trajectory of patients with EB, including age at time of clinical diagnosis and major clinical events, is needed to refine best practices and improve quality of life and clinical outcomes for patients with EB. Objectives: To describe demographics, clinical...
Read the complete abstract on PubMedTopics
- Adolescent
- Age Distribution
- Biopsy, Needle
- Canada