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Article

Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review.

Journal of medical Internet research - 15 May 2020

Jones Kerina, Daniels Helen, Heys Sharon, Lacey Arron, Ford David V

Abstract excerpt

BACKGROUND: Research using genomic data opens up new insights into health and disease. Being able to use the data in association with health and administrative record data held in safe havens can multiply the benefits. However, there is much discussion about the use of genomic data with perceptions of particular challenges in doing so safely and effectively. OBJECTIVE: This study aimed to work toward a...

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PMID: 32412420
DOI: 10.2196/16346
PMCID: PMC7260661

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