Article
Identification and outcomes of clinical phenotypes in amyotrophic lateral sclerosis/motor neuron disease: Australian National Motor Neuron Disease observational cohort.
BMJ open - 30 Sept 2016
Talman Paul, Duong Thi, Vucic Steve, Mathers Susan, Venkatesh Svetha, Henderson Robert, Rowe Dominic, Schultz David, Edis Robert, Needham Merrilee, Macdonnell Richard, McCombe Pamela, Birks Carol, Kiernan Matthew
Abstract excerpt
OBJECTIVE: To capture the clinical patterns, timing of key milestones and survival of patients presenting with amyotrophic lateral sclerosis/motor neuron disease (ALS/MND) within Australia. METHODS: Data were prospectively collected and were timed to normal clinical assessments. An initial registration clinical report form (CRF) and subsequent ongoing assessment CRFs were submitted with a completion CRF at the...
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