Article
Consent Codes: Upholding Standard Data Use Conditions
21 Jan 2016
Abstract excerpt
respect the consent of research participants and patients. As members of the Global Alliance for Genomics and Health (Global Alliance), we examined the variation in data use conditions that are based on consent provisions for genomics datasets in research and clinical settings based on the following: (1) a review of guidance from the National Institutes of Health; (2) a survey of data use conditions for data...
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