Article
Analysis of state laws on informed consent for clinical genetic testing in the era of genomic sequencing.
American journal of medical genetics. Part C, Seminars in medical genetics - 1 Mar 2018
Spector-Bagdady Kayte, Prince Anya E R, Yu Joon-Ho, Appelbaum Paul S
Abstract excerpt
This article assesses the adequacy of informed consent to clinical genetic testing laws based on an examination of 15 states with institutions that had been involved in a National Institutes of Health-supported Clinical Sequencing Exploratory Research Consortium project. We identified relevant statutory provisions through a legal search engine and included statutes that describe the informed consent requirements...
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