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Article

Disclosure of research results: a randomized study on GENEPSO-PS cohort participants.

Health expectations : an international journal of public participation in health care and health policy - 1 Oct 2016

Mancini Julien, Le Cozannet Elodie, Bouhnik Anne-Déborah, Resseguier Noémie, Lasset Christine, Mouret-Fourme Emmanuelle, Noguès Catherine, Julian-Reynier Claire

Abstract excerpt

BACKGROUND: There exist no recommendations as to how aggregate research results should best be disclosed to long-term cohort participants. OBJECTIVE: To study the impact of cohort results disclosure documents of various kinds on participants' satisfaction. DESIGN: Randomized study with a 2x2 factorial design. SETTING AND PARTICIPANTS: The GENEPSO-PS cohort is used to study the psychosocial characteristics and...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Source

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Identifiers

PMID: 26205609
DOI: 10.1111/hex.12390
PMCID: PMC5054914

Genes

BRCA1

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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