Article
An online monogenic diabetes discussion group: supporting families and fueling new research.
Translational research : the journal of laboratory and clinical medicine - 1 Nov 2015
Perrone Marie E, Carmody David, Philipson Louis H, Greeley Siri Atma W
Abstract excerpt
Many online support groups are available for patients with rare disorders, but scant evidence is available on how effectively such groups provide useful information or valuable psychosocial support to their participants. It is also unclear to what extent physicians and researchers may learn more about these disorders by participating in such groups. To formally assess the utility of the Kovler Monogenic Diabetes...
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