Article
The role of support groups in facilitating families in coping with a genetic condition and in discussion of genetic risk information.
Health expectations : an international journal of public participation in health care and health policy - 1 Sept 2012
Plumridge Gillian, Metcalfe Alison, Coad Jane, Gill Paramjit
Abstract excerpt
BACKGROUND: Giving children and young people information about genetic conditions and associated risk has been shown to be important to their identity, coping and decision making. Parents, however, find talking to their children difficult, and support from health professionals is often not availa...
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