Article

Addressing the Need for Patient-friendly Medical Communications: Adaptation of the 2019 Recommendations for the Management of MPS VI and MPS IVA

2021-08-13

Abstract excerpt

<title>Abstract</title> <p>BackgroundPatients are the most important stakeholders in the care of any disease and have an educational need to learn about their condition and the treatment they should receive. Considering this need for patient-focused materials, we present a directed approach for mucopolysaccharidosis (MPS) VI and MPS IVA, a pair of rare, inherited diseases that affects multiple organs and parts of...

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Literature Corpus work: 550c06af-7315-5864-a9cc-2c2d283689e6
DOI: 10.21203/rs.3.rs-801127/v1

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