Article
The Val30Met familial amyloid polyneuropathy specific Rasch-built overall disability scale (FAP-RODS(©) ).
Journal of the peripheral nervous system : JPNS - 1 Sept 2015
Pruppers Mariëlle H J, Merkies Ingemar S J, Faber Catharina G, Da Silva Ana M, Costa Vanessa, Coelho Teresa
Abstract excerpt
Familial amyloid polyneuropathy (FAP) is a chronic debilitating multi-organic disorder, mainly assessed using ordinal-based impairment measures. To date, no outcome measure at the activity and participation level has been constructed in FAP. The current study aimed to design an interval activity/participation scale for FAP through Rasch methodology. A preliminary FAP Rasch-built overall disability scale...
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