Back to search

Article

Psychometric Properties of the Patient Reported Outcomes Measurement Information System (PROMIS) Scales in Acute Intermittent Porphyria Patients

2022-03-02

Abstract excerpt

<h4>Background: </h4> Acute Intermittent Porphyria (AIP) is a rare inborn error of heme biosynthesis characterized clinically by life-threatening acute neurovisceral attacks. Few studies have assessed quality of life (QoL) tools in the AIP population, and none are validated for use in AIP. In this study, the Patient Reported Outcomes Measurement Information System 57 (PROMIS-57) scales were assessed in AIP patient...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work
eefef51d-4b9e-50e8-b600-2f6bf2886e73
DOI
10.21203/rs.3.rs-1393058/v1
Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest
Interactive article relationship graphSelect a related publication card to move it into the centre and load its closest explainable connections. Solid lines are source-backed structured connections. Dashed lines are semantic discovery signals and are not scientific evidence.
Psychometric Properties of the Patient Reported Outcomes Measurement Information System (PROMIS) Scales in Acute Intermittent Porphyria PatientsDOI 10.21203/rs.3.rs-1393058/v1
Patient and Caregiver Experiences of Living With Acute Hepatic Porphyria in the UK: A Mixed-Methods StudySemantic proximity
Health impact of acute intermittent porphyria in latent and non-recurrent attacks patientsSemantic proximity
Acute hepatic porphyrias: Recommendations for diagnosis and management with real-world examplesSemantic proximity
Recommendations for recognizing and diagnosing Acute Hepatic Porphyria in atypical patient populationsSemantic proximity
Unmet Needs in Acute Hepatic Porphyria Diagnosis: A Comparative Big Data Analysis of an AI-based Human-in-the-Loop Screening Versus Standard of CareSemantic proximity
Evaluating the Psychometric Properties of the Simplified Chinese Version of PROMIS-29 in Patients with Hematologic MalignanciesSemantic proximity
Exploring the content validity of the Unified Wilson Disease Rating Scale: Insights from qualitative researchSemantic proximity
Erythropoietic Protoporphyria Life Impact and Genetic Health Trajectory (LIGHT) Study in Europe: A Cross-Sectional Online QuestionnaireSemantic proximity
Long-term follow-up of givosiran treatment in patients with acute intermittent porphyria from a phase 1/2, 48-month open-label extension studySemantic proximity
Psychometric Validation of the PROISCD-CG Scale in Patients With Chronic Gastritis: A Structural Equation Modeling ApproachSemantic proximity
A Perfect Storm: Abdominal Pain and Ileus Explained by Acute Intermittent Porphyria Caused by Prehospitalization and Intrahospitalization Factors.Semantic proximity
The Study Protocol for GENESIS: GENEral population normS—An International SurveySemantic proximity
Select a neighboring publication to make it the new centre.