Article

From quality of life measurement to dialogical practice: Reframing quality of life assessment in patients with muscular dystrophy

2026-04-13

Abstract excerpt

<p>Assessing quality of life (QoL) is essential in patients with muscular dystrophy where functional improvement is limited. Generic health-related QoL instruments may underestimate patients' well-being by focusing on functional decline, raising questions about how QoL should be understood in those people. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL) offers an individualized approach in w...

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Literature Corpus work: b0c1a627-cd09-5ef8-9d69-b19955eac352
DOI: 10.31234/osf.io/eqw7r_v1

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