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Harvard Personal Genome Project: lessons from participatory public research

28 Feb 2014

Abstract excerpt

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an 'open consent' framework that purposefully excludes promises about privacy and requires participants to demonstrate comprehension prior to enrollment. DISCUSSION: Our model of...

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PMID: 24713084
DOI: 10.1186/gm527

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