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Article

The experience of families with children with trisomy 13 and 18 in social networks.

Pediatrics - 1 Aug 2012

Janvier Annie, Farlow Barbara, Wilfond Benjamin S

Abstract excerpt

BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates and survivors have significant disabilities. For these reasons, interventions are generally not recommended by providers. After a diagnosis, parents may turn to support groups for additional information. METHODS: We surveyed parents of children with T13-18 who belong to support groups to describe their experiences and...

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Source

Identifiers

PMID: 22826570
DOI: 10.1542/peds.2012-0151

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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