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Article

Surviving with trisomy 13: Provider and parent perspectives and the role of the pediatric palliative care program

25 Dec 2016

Abstract excerpt

Trisomy 13 typically denotes an overall poor prognosis in the setting of multisystem anomalies. Through a provider and parent perspective, this case illustrates the benefit of hope, communication, and teamwork through the integration of a palliative care team in the care of a medically complex child with trisomy 13, resulting in enhance survival and perceived quality of life for patient and family. © 2016 Wiley...

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PMID: 28019075
DOI: 10.1002/ajmg.a.37984

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