Article
Ethical aspects of participation in the database of genotypes and phenotypes of the National Center for Biotechnology Information: the Cancer and Leukemia Group B Experience.
Cancer - 15 Oct 2012
Peppercorn Jeffrey, Shapira Iuliana, Deshields Teressa, Kroetz Deanna, Friedman Paula, Spears Patricia, Collyar Deborah E, Shulman Lawrence N, Dressler Lynn, Bertagnolli Monica M
Abstract excerpt
BACKGROUND: The rapid pace of genetics research, coupled with evolving standards for informed consent, can create ethical challenges regarding future use of tissue or information from completed clinical trials. The Cancer and Leukemia Group B (CALGB) Oncology Cooperative Group was faced with an ethical dilemma regarding sharing genetic data from a completed genome-wide association study (GWAS) that was conducted...
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