Article
Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era.
Annual review of genomics and human genetics - 1 Jan 2009
O'Brien Stephen J
Abstract excerpt
An ethical quandary is emerging over custodianship of and access to DNA specimens and attached data, clinical and genetic, held in large disease cohort collections. The balance of patients' rights and science/society's quest for broad open access must be resolved in order to realize the promise o...
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