Article
Generation after generation: exploring the psychological impact of providing genetic services through a cascading approach.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Dec 2010
Hadley Donald W, Ashida Sato, Jenkins Jean F, Martin Jean C, Calzone Kathleen A, Kuhn Natalia R, McBride Colleen M, Kirsch Ilan R, Koehly Laura M
Abstract excerpt
PURPOSE: The provision of genetic services often occurs in a cascading fashion within families experiencing inherited diseases. This study examines whether previous family experiences with genetic services influences levels of psychological well-being of family members receiving services later. METHODS: Two hundred ninety-seven persons from 38 families with Lynch syndrome completed questionnaires before receiving...
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