Article
"I have always lived with the disease in the family": family adaptation to hereditary cancer-risk.
BMC primary care - 23 Apr 2022
Silva Eliana, Gomes Pedro, Matos Paula M, Silva Eunice R, Silva João, Brandão Catarina, Castro Fernando, Neves Maria Carolina, Sales Célia M D
Abstract excerpt
BACKGROUND: Hereditary cancer syndromes have been conceptualized as a family level process. The present study explores the complexity and challenges of family adaptation to the hereditary cancer syndrome, in the context of genetic counseling and long-term cancer risk management and follow-up surveillance. METHODS: We performed semi-structured interviews with 13 participants with one of the following hereditary...
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