Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

To tell or not to tell: barriers and facilitators in family communication about genetic risk.

Clinical genetics - 1 Oct 2003

Forrest K, Simpson S A, Wilson B J, van Teijlingen E R, McKee L, Haites N, Matthews E

Abstract excerpt

Communication about genetic risk in families is an important issue for genetic counsellors. The objective of this study was to explore the barriers and facilitators in family communication about genetic risk. Semi-structured interviews were undertaken with patients in the Northeast of Scotland who had attended genetic counselling for risk of hereditary breast and ovarian cancer and Huntington's disease, and with...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Communication
Share to Decision Making
Share to Family

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Genetic Counseling

Share to Scotland

Share to Surveys and Questionnaires

Share to Truth Disclosure

Share to Uncertainty

Source

Identifiers

PMID: 12974737
DOI: 10.1034/j.1399-0004.2003.00142.x

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 6 Sept 2026. Manifest publication-graph-cohort-2026-09-06.1.

Source receipt: pubmed, retrieved 6 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

To tell or not to tell: barriers and facilitators in family communication about genetic risk.PMID 12974737Read ↗

‘It's their blood not mine’: Who's responsible for (not) telling relatives about genetic risk?Semantic proximity Read ↗

How hereditary cancer risk disclosure to relatives is handled in practice - Patient perspectives from a Swedish cancer genetics clinic.Semantic proximity Read ↗

What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research.Semantic proximity Read ↗

How young people find out about their family history of Huntington's disease.Semantic proximity Read ↗

Communicating inherited genetic risk between parent and child: a meta-thematic synthesis.Semantic proximity Read ↗

Process and outcome in communication of genetic information within families: a systematic review.Semantic proximity Read ↗

Whether, when, and how to communicate genetic risk to minors: ‘I wanted more information but I think they were scared I couldn’t handle it’Semantic proximity Read ↗

A genetic researcher's devil's dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?Semantic proximity Read ↗

What can we Learn from Patients' Ethical Thinking about the right 'not to know' in Genomics? Lessons from Cancer Genetic Testing for Genetic Counselling.Semantic proximity Read ↗

Communicating genetic risk information within families: a review.Semantic proximity Read ↗

The Process of Disclosure: Mothers' Experiences of Communicating X-Linked Carrier Risk Information to At-Risk Daughters.Semantic proximity Read ↗

‘I don't see any point in telling them’: attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinicSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.