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Article

Assessing the understanding of biobank participants.

American journal of medical genetics. Part A - 1 Feb 2009

Ormond K E, Cirino A L, Helenowski I B, Chisholm R L, Wolf W A

Abstract excerpt

Biobanks have been developed as a tool to better understand the genetic basis of disease by linking DNA samples to corresponding medical information. The broad scope of such projects presents a challenge to informed consent and participant understanding. To address this, 200 telephone interviews were conducted with participants in the NUgene Project, Northwestern University's biobank. Interviews included a...

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Identifiers

PMID: 19161150
DOI: 10.1002/ajmg.a.32635

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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