Article
Are genetic tests exceptional? Lessons from a qualitative study on thrombophilia.
Social science & medicine (1982) - 1 Oct 2006
Saukko Paula M, Richards Suzanne H, Shepherd Maggie H, Campbell John L
Abstract excerpt
Policy makers have suggested that information about genetic risk factors, which are associated with low risk and for which preventive strategies exist, should not be considered "exceptional" and should not warrant special safeguards, such as data protection or specialist pre-test counselling. There is scant research on how such risk factors are perceived, and to explore this we conducted qualitative interviews...
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