Article
'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.
Haemophilia : the official journal of the World Federation of Hemophilia - 1 May 2011
Khair K, Gibson F, Meerabeau L
Abstract excerpt
This paper presents the results of a study talking to children and young people affected with severe haemophilia A and/or haemophilia B about their knowledge and understanding of genetics and inheritance. These data were gathered in a qualitative study using semi-structured interviews with thirty boys aged four to sixteen discussing the impact of haemophilia on their lives. Responses were tape recorded,...
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