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Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder

21 Dec 2005

Abstract excerpt

OBJECTIVE: To increase the awareness among at risk relatives of the availability of genetic testing for a familial disorder while respecting their autonomy and privacy. METHODS: This was a comparison of preintervention and postintervention cohorts of families carried out in a state wide clinical service providing genetic counselling and testing for people at risk of familial adult onset cancer. Unaffected...

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PMID: 16371501
DOI: 10.1136/jmg.2005.039172

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