Article
Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent.
American journal of medical genetics. Part A - 1 Feb 2003
Bernhardt Barbara A, Tambor Ellen S, Fraser Gertrude, Wissow Lawrence S, Geller Gail
Abstract excerpt
PURPOSE: Children at high risk of future disease may be recruited for participation in disease susceptibility research involving genetic testing. This study was aimed at assessing parents' and children's reactions to such research, and their perceptions of risks and benefits of participating. METHODS: Parents and children (ages 10-17) from families at increased risk for breast cancer (n = 16 dyads) and heart...
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