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A Pre-Post Single-Arm Trial of a Multicomponent Intervention for Self-Efficacy Enhancement among an Online Support Group of Primary Caregivers of Children with Neuro Muscular Disorders: SEE-NMD Protocol

2026-05-06

Abstract excerpt

<h4>Introduction</h4> Spinal Muscular Atrophy (SMA) and Duchenne Muscular Dystrophy (DMD) are progressive genetic neuromuscular disorders imposing substantial caregiving demands on families. In Pakistan, where disease-modifying therapies remain largely inaccessible, care is predominantly supportive, frequently resulting in psychological distress and diminished caregiver confidence. An individual’s belief in their...

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Literature Corpus work
f4db1072-8498-568e-95c2-7d00b7da4e48
DOI
10.64898/2026.05.04.26352405
Open publication

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A Pre-Post Single-Arm Trial of a Multicomponent Intervention for Self-Efficacy Enhancement among an Online Support Group of Primary Caregivers of Children with Neuro Muscular Disorders: SEE-NMD ProtocolDOI 10.64898/2026.05.04.26352405
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