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Psychosocial effects of attending educational and support conferences on adults with rare diseases: A pre-post study.

2026-04-02

Abstract excerpt

<title>Abstract</title> <p> Background For adults with rare diseases (RDs), education and support conferences may serve as important platforms for disease-specific information and psychosocial support. This study examined the effects of RD conferences on psychosocial health, specifically self-efficacy, perceived stigma, social comfort and social support, among adults with RDs. Methods This pre-post quasiexperi...

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Literature Corpus work
a85eec15-2d1e-5bee-af89-9c70b41e2a68
DOI
10.21203/rs.3.rs-8975124/v1
Open publication

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Psychosocial effects of attending educational and support conferences on adults with rare diseases: A pre-post study.DOI 10.21203/rs.3.rs-8975124/v1
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