Article

Shifting focus from ideality to reality: a qualitative study on how quality of life is defined by premanifest and manifest Huntington’s disease gene expansion carriers

2024-05-29

Abstract excerpt

<title>Abstract</title> <p><bold>Background</bold>: Understanding quality of life (QoL) is important in diseases for which there is no cure to date, such as Huntington’s disease (HD). A deeper level of understanding is, however, compromised by the lack of studies examining QoL from the perspectives of HD gene expansion carriers (HDGECs). Only a few qualitative studies on QoL in HD have been performed, yet none in...

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Literature Corpus work: e28f09c9-e7d5-55a4-8ef5-a19461552306
DOI: 10.21203/rs.3.rs-3964487/v1

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Shifting focus from ideality to reality: a qualitative study on how quality of life is defined by premanifest and manifest Huntington’s disease gene expansion carriersDOI 10.21203/rs.3.rs-3964487/v1Read

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