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The Other Side of Variant Transthyretin Amyloidosis With Polyneuropathy: Psychosocial Experience of Members of Portuguese Families with Late Onset of the Disease

2024-05-14

Abstract excerpt

<title>Abstract</title> <p>This study is the first to explore the psychosocial experience of members of Portuguese families with late-onset variant transthyretin amyloidosis with polyneuropathy (A-ATTRv-PN). Based on a constructivist worldview, this phenomenological investigation followed a qualitative approach by conducting eight interviews and analyzing qualitative data. The main results suggest that the psycho...

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Literature Corpus work
e14dcad3-4fed-5ac9-bc02-480b1fa74ea7
DOI
10.21203/rs.3.rs-4384538/v1
Open publication

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The Other Side of Variant Transthyretin Amyloidosis With Polyneuropathy: Psychosocial Experience of Members of Portuguese Families with Late Onset of the DiseaseDOI 10.21203/rs.3.rs-4384538/v1
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