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Living with Transthyretin amyloid cardiomyopathy from a patient perspective.

BMC cardiovascular disorders - 12 Nov 2025

Bui Quan M, McCain Julia, Allen Larry A, Adler Eric D, Anderson Cheryl, Bloss Cinnamon, Rabin Borsika A, Urey Marcus A

Abstract excerpt

BACKGROUND: Transthyretin amyloid cardiomyopathy (ATTR-CM) is a progressive condition for which disease-modifying therapies are increasingly available. However, limited research has explored the patient experience with ATTR-CM and its impact on quality of life. METHODS: In this single-center qualitative study, we conducted semi-structured interviews with ten participants (either with ATTR-CM or at-risk family...

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Amyloid Neuropathies, Familial
Cost of Illness
Delayed Diagnosis
Health Knowledge, Attitudes, Practice
Healthcare Disparities

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Interviews as Topic

Qualitative Research

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Identifiers

PMID: 41225314
DOI: 10.1186/s12872-025-05282-7
PMCID: PMC12613388

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TTR

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 1 Sept 2026.

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