Article

Patients' perceptions and performance of informing relatives: A qualitative study within a trial on healthcare-assisted risk disclosure (DIRECT)

2023-06-26

Abstract excerpt

<title>Abstract</title> <p>Current clinical practice encourages patients with hereditary cancer to inform their at-risk relatives (ARR). A Swedish multicentre randomised controlled trial - DIRECT- evaluates whether direct letters from healthcare to ARR (intervention) affects the proportion being reached compared with patient-mediated disclosure only (control). We conducted 17 semi-structured interviews on how DIR...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: d313d7f4-6b7f-5426-b43b-ba4b429a0bb0
DOI: 10.21203/rs.3.rs-3059292/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Patients' perceptions and performance of informing relatives: A qualitative study within a trial on healthcare-assisted risk disclosure (DIRECT)DOI 10.21203/rs.3.rs-3059292/v1Read

Direct letters to relatives at risk of hereditary cancer-a randomised trial on healthcare-assisted versus family-mediated risk disclosure.Semantic proximity Read

Direct letters to relatives at risk of hereditary cancer – study protocol for a multi-centre randomised controlled trial of healthcare-assisted versus family-mediated risk disclosure at Swedish cancer genetics clinics (DIRECT-study)Semantic proximity Read

The experience of receiving a letter from a cancer genetics clinic about risk for hereditary cancerSemantic proximity Read

Direct letters to relatives at risk of hereditary cancer-study protocol for a multi-center randomized controlled trial of healthcare-assisted versus family-mediated risk disclosure at Swedish cancer genetics clinics (DIRECT-study).Semantic proximity Read

The experience of receiving a letter from a cancer genetics clinic about risk for hereditary cancer.Semantic proximity Read

How hereditary cancer risk disclosure to relatives is handled in practice - Patient perspectives from a Swedish cancer genetics clinic.Semantic proximity Read

Modes of responsibility in disclosing cancer genetic test results to relatives: An analysis of Swiss and Korean narrative data.Semantic proximity Read

Health professionals contacting patients' relatives directly about genetic risk (with patient consent): current clinical practice and perspectives.Semantic proximity Read

A scoping review of parents' disclosure of BRCA1/2 genetic alteration test results to underage children.Semantic proximity Read

Patients' perspectives regarding health professionals contacting their relatives about genetic risk directly (with patient consent).Semantic proximity Read

Whether, when, how, and how much? General public’s and cancer patients’ views about the disclosure of genomic secondary findingsSemantic proximity Read

Public perspectives on healthcare professional-directed communication of hereditary genetic risks: a mixed-method systematic review.Semantic proximity Read