Article

Building public trust and confidence in secondary use of health data for healthcare improvement and research: a qualitative study pre-protocol

2024-06-17

Abstract excerpt

<h4>Background: </h4> Secondary use of health data provides opportunities to drive improvements in healthcare provision, personalised medicine, comparative effectiveness research, health services innovation, and policy and practice. However, secondary data use requires compliance with relevant legislation, implementation of technical safeguards, ethical data management, and respect for data sharers. Existing evi...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: cba52646-5c4c-5564-ac58-286f761f70cd
DOI: 10.12688/hrbopenres.13711.2

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Building public trust and confidence in secondary use of health data for healthcare improvement and research: a qualitative study pre-protocolDOI 10.12688/hrbopenres.13711.2Read

“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of IrelandSemantic proximity Read

Physicians’ Attitudes towards Secondary Use of Clinical Data for Biomedical Research Purposes in Germany. Results of a Quantitative SurveySemantic proximity Read

Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staffSemantic proximity Read

Trust and Trade: Patient Perspectives on the Ethics of Real-World Data MonetisationSemantic proximity Read

Public opinion on sharing data from UK health services for clinical and research purposes without explicit consentSemantic proximity Read

Data quality and Big Data in the health industry: a scoping review protocolSemantic proximity Read

Public attitudes toward sharing health data for artificial intelligence: Differences by data type and sector in the Health in Central Denmark cohortSemantic proximity Read

Consent to Recontact for Future Research Using Linked Primary Healthcare Data: Outcomes and General Practice Perceptions from the ATHENA COVID-19 StudySemantic proximity Read

Trust and Trade: Patient Perspectives on the Ethics of Real-World Data MonetisationSemantic proximity Read

Australian General Practitioner Perceptions to Sharing Clinical Data for Secondary Use: A Mixed Method ApproachSemantic proximity Read

How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping reviewSemantic proximity Read

Using administrative health data for palliative and end of life care research in Ireland: potential and challengesSemantic proximity Read