Back to search

Article

“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland

2019-01-17

Abstract excerpt

<h4>Background: </h4> : Use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public understanding about this work, have lagged behind. We aimed to systematically review the literature on UK and Irish public views of patient data used in research, critically analysing such views though...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work
73a67145-6a31-5046-9dea-47815e9e2f59
DOI
10.12688/wellcomeopenres.13531.2
Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest
Interactive article relationship graphSelect a related publication card to move it into the centre and load its closest explainable connections. Solid lines are source-backed structured connections. Dashed lines are semantic discovery signals and are not scientific evidence.
“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of IrelandDOI 10.12688/wellcomeopenres.13531.2
Building public trust and confidence in secondary use of health data for healthcare improvement and research: a qualitative study pre-protocolSemantic proximity
Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staffSemantic proximity
Public Preferences regarding Data Linkage for Research: A Discrete Choice Experiment comparing Scotland and SwedenSemantic proximity
Public opinion on sharing data from UK health services for clinical and research purposes without explicit consentSemantic proximity
Trust and Trade: Patient Perspectives on the Ethics of Real-World Data MonetisationSemantic proximity
Trust and Trade: Patient Perspectives on the Ethics of Real-World Data MonetisationSemantic proximity
Physicians’ Attitudes towards Secondary Use of Clinical Data for Biomedical Research Purposes in Germany. Results of a Quantitative SurveySemantic proximity
Public attitudes toward sharing health data for artificial intelligence: Differences by data type and sector in the Health in Central Denmark cohortSemantic proximity
How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping reviewSemantic proximity
Public knowledge of general practice data sharing: findings from a focus group study and cross-sectional surveySemantic proximity
Perceptions and willingness of patients and caregivers on the utilization of patient-generated health data: a cross-sectional surveySemantic proximity
Public perception of the use of clinical decision support tools within the NHS for rare disease case findingSemantic proximity
Select a neighboring publication to make it the new centre.