Article
Patient reported quality of life in limb girdle muscular dystrophy.
Neuromuscular disorders : NMD - 1 Jan 2022
Kovalchick Laurel V, Bates Kameron, Statland Jeffrey, Weihl Conrad, Kang Peter B, Lowes Linda P, Mozaffar Tahseen, Straub Volker, Wicklund Matthew, Heatwole Chad, Johnson Nicholas E
Abstract excerpt
This study determined the frequency and impact of symptoms on quality of life in patients diagnosed with limb girdle muscular dystrophy (LGMD). Participants with a diagnosis of LGMD in registries based at the Coalition to Cure Calpain-3, the Jain foundation, and the Global FKRP Registry competed a survey to report the frequency and relative impact of themes and symptoms of LGMD. Frequency, mean impact, and...
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