Article

Supporting positive patient experiences for rare disease care during disruptive times: findings from a multicentre study

2023-08-02

Abstract excerpt

<title>Abstract</title> <p><bold>Introduction:</bold> We describe the perceptions and experiences of health care services during the COVID-19 pandemic of those newly diagnosed with a rare, chronic inflammatory eye disorder. <bold>Methods:</bold> We undertook a cross-sectional study nested within a longitudinal multi-centre inception cohort study. Participants were families and young people (aged under 18 years) n...

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Literature Corpus work: 0747ff94-3952-5e18-8ae2-1dc5f27d1711
DOI: 10.21203/rs.3.rs-3133181/v1

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