Immortal Data: A qualitative exploration of patients’ understandings of genomic data

Abstract excerpt

<title>Abstract</title> <p>As ambitions to ‘mainstream’ genetic and genomic medicine in the UK advance, genomic data is becoming increasingly familiar to patients. Unlike the results of many other medical investigations which are linked to the time of sample collection, genomic testing provides <italic>immortal</italic> data that do not change across time, and may have relevance for relatives and generations far...

Topics

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• BRCA gene mutations in cancer
• Cancer Genomics and Diagnostics
• Ethics in Clinical Research
• Genetic Engineering
• Genetic Predisposition to Disease
• Genetic Privacy
• Genomics and Rare Diseases
• Race, Genetics, and Society

Identifiers and source

Literature Corpus work

98902dd1-8693-5d08-b71d-1cb7c3ecf6f5

DOI

10.21203/rs.3.rs-1827972/v1