Article

Navigating the Impact of the 21st Century Cures Act Final Rule: A National Cross-Sectional Survey of U.S. Genetic Counselors

2024-10-15

Abstract excerpt

The 21 st Century Cures Act Final Rule (Final Rule) increases patient access to their health records but raises concerns about distress and misunderstanding of automatically released results and documentation. Little is known about genetic counselors’ (GCs’) experiences with the Final Rule. In Fall 2023, we conducted a cross-sectional survey of U.S. GCs about the Final Rule’s perceived impact on practice and asses...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: 4b53cdbb-1be3-5f33-9eb0-7833cc9dedd3
DOI: 10.1101/2024.10.13.24315353

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Navigating the Impact of the 21st Century Cures Act Final Rule: A National Cross-Sectional Survey of U.S. Genetic CounselorsDOI 10.1101/2024.10.13.24315353Read

A Closer Look at the Recommended Criteria for Disclosing Genetic Results: Perspectives of Medical Genetic Specialists, Genomic Researchers, and Institutional Review Board ChairsSemantic proximity Read

Challenges and Errors in Genetic TestingSemantic proximity Read

Ambient AI Documentation in Clinical Genetics: Perspectives on Implementation and Impact on BurnoutSemantic proximity Read

The NYCKidSeq randomized controlled trial: Impact of GUÍA digitally enhanced genetic counseling in racially and ethnically diverse familiesSemantic proximity Read

Clinical genetic counselor experience in the adoption of telehealth in the United States and Canada during the COVID‐19 pandemicSemantic proximity Read

Application of a framework to guide genetic testing communication across clinical indicationsSemantic proximity Read

From Recognition to Reimbursement: An Assessment of State Medicaid Coverage Policies for Genetic Counselors and a Path ForwardSemantic proximity Read

Assessing patient communication preferences for reclassified variants of uncertain significance in a general genetics clinic.Semantic proximity Read

Strategic Development of the Genetic Counselor Profession in Germany, Austria, and Switzerland: The Establishment of the <scp>GfH</scp> Genetic Counselor CommissionSemantic proximity Read

Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratoriesSemantic proximity Read

GUÍA: a digital platform to facilitate result disclosure in genetic counselingSemantic proximity Read

Defining the Critical Educational Components of Informed Consent for Genetic Testing: Views of US-Based Genetic Counselors and Medical GeneticistsSemantic proximity Read