Article

Combining deliberative engagement with qualitative research to assess patient and caregiver perspectives on curative therapies for sickle cell disease in Africa

2025-07-30

Abstract excerpt

The vast majority of individuals impacted by sickle cell disease (SCD) live in Africa, where access to potentially curative therapies such as hematopoietic stem cell transplant and gene therapies have been severely limited until now. As part of a broad effort to help prepare scientific, healthcare, and patient communities in Tanzania for the introduction of advanced SCD therapies, we sought to understand perspecti...

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Literature Corpus work: 2a9697bf-0011-5294-9534-544b5bf8e7a4
DOI: 10.1101/2025.07.30.25332426

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