Article
Usefulness of a national registry of alpha-1-antitrypsin deficiency. The Spanish experience.
Respiratory medicine - 1 Oct 1998
Miravitlles M, Vidal R, Barros-Tizón J C, Bustamante A, España P P, Casas F, Martínez M T, Escudero C, Jardi R
Abstract excerpt
Severe alpha-1-antitrypsin (AAT) deficiency, phenotype Pi ZZ, is a rare condition with an estimated prevalence of 1/4500 individuals in Spain. Given this low prevalence, it seems useful to accumulate all the information derived from the care of these patients. In this context, the Spanish Registry of patients with AAT deficiency was founded in 1993; its main objectives were to establish guidelines adapted to our...
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