Article
[The German registry of individuals with alpha-1-antitrypsin deficiency--a source for research on patient care].
Pneumologie (Stuttgart, Germany) - 1 Nov 2008
Koczulla R, Bittkowski N, Andress J, Greulich T, Schroth S, Kotke V, Vogelmeier C, Bals R
Abstract excerpt
BACKGROUND: alpha-1-Antitrypsin deficiency (AATD) is a rare condition with a prevalence of about 1/4000 individuals in Germany. The clinical manifestations are the early development of pulmonary emphysema or of liver cirrhosis. The low prevalence of AATD suggested the establishment of a registry with the aim to learn more details about the natural history and the quality of care for these patients. METHODS,...
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