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Article

Design, implementation and evaluation of a model of care for patients with germline predisposition to haematological malignancy and bone marrow failure syndromes.

Internal medicine journal - 1 Aug 2025

Fox Lucy C, Goode Erin, Den Elzen Nicole, Cheng Lin, Barth Laura, Man Kelsey, Jarmolowicz Anna, Panjari Mary, Best Stephanie, Thursky Karin, James Paul, Bajel Ashish, Ritchie David, Blombery Piers

Abstract excerpt

BACKGROUND: The bone marrow failure syndromes (BMFS) are clinically heterogeneous conditions with both inherited and acquired etiologies. Optimal care is often challenged by the complexity of these disorders and gaps in healthcare delivery. The Evaluating Multidisciplinary Bone maRrow fAilure CarE (EMBRACE) study is a multi-stage hybrid implementation-effectiveness study designed to explore the nature of issues...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 40598719
DOI: 10.1111/imj.70125
PMCID: PMC12347311

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