Article
Informed consent in direct-to-consumer personal genome testing: the outline of a model between specific and generic consent.
Bioethics - 1 Sept 2014
Bunnik Eline M, Janssens A Cecile J W, Schermer Maartje H N
Abstract excerpt
Broad genome-wide testing is increasingly finding its way to the public through the online direct-to-consumer marketing of so-called personal genome tests. Personal genome tests estimate genetic susceptibilities to multiple diseases and other phenotypic traits simultaneously. Providers commonly make use of Terms of Service agreements rather than informed consent procedures. However, to protect consumers from the...
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