Article
Adolescent and Young Adult Understanding of Their Childhood Cancer Predisposition Diagnosis: A Qualitative Study.
The Journal of pediatrics - 1 Oct 2023
Howard Sharp Katianne M, Blake Alise, Flynn Jessica, Brown Sydney, Rashed Jihan, Harrison Lynn, McGee Rose, Mandrell Belinda, Nichols Kim E
Abstract excerpt
We characterized germline genetic test result understanding in adolescents and young adults (AYAs) (n = 21) with cancer 1-3.9 years post-disclosure using semistructured qualitative interviews. Most AYAs articulated their cancer risk; however, 5 did not remember results and a subset demonstrated misperceptions regarding risk or confusion regarding their medical care. These findings highlight variability in AYA...
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