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Assessing barriers and facilitators to transition in sickle cell disease care prior to implementation of a formalized program

8 Jan 2023

Abstract excerpt

Over 95% of children with sickle cell disease (SCD) survive into adulthood in the United States. However, early mortality remains a problem, especially in persons between the ages of 18 and 35. One possible explanation for the increased mortality rate in young adults is difficulties in engaging in care during the transition from a heavily contiguous pediatric healthcare model to a more self-reliant adult...

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PMID: 36617736
DOI: 10.1002/pbc.30160

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