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Article

Health‐related quality of life in adults with osteogenesis imperfecta

14 Feb 2021

Abstract excerpt

Patient-reported outcome measures (PROMs) are increasingly utilized as endpoints in clinical trials. The Short Form Health Survey-12 (SF-12v2) is a generic PROM for adults. We sought to evaluate the validity of SF-12v2 in adults with osteogenesis imperfecta (OI). Physical and mental health-related quality of life (HRQoL) were assessed in a large cohort of adults in a multicenter, observational, natural history...

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PMID: 33580568
DOI: 10.1111/cge.13939

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